At Their Fingertips 2015 film complet
Nadia Kuznetsova is 28 years old, she lives in Veliky Novgorod, graduated from school and University here, and dreams of going to the sea - and getting her fingers back. Nadia has a rare genetic disease-epidermolysis bullosa, which is called butterfly syndrome. The patient's skin is injured by any touch. The disease is incurable: as Nadia herself says, I don't fight it – I live with it. She is fighting for something else - to lead the life of an ordinary person.
Avec
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